Showing posts with label ocd. Show all posts
Showing posts with label ocd. Show all posts

Sunday, January 4, 2015

Dear Suicidal Teens (And How Dear You Are, Indeed)


Dear Suicidal Aspie Teen (Or Autistic Teen, Or Teen With PDD-NOS, Or ADHD Teen, Or OCD Teen, Or Bipolar Teen, or Depressed Teen, or Gay Teen, or Trans Teen, or Bullied Teen, or Abused Teen, or Whoever You May Be):

I can’t promise that you’ll wake up one morning and your world will be filled with endless sunshine (or moonlight, if that’s more your style) and happiness and prosperity and that you’ll never have another self-loathing or suicidal thought ever again. I can’t promise that you’ll ever be the most well-liked person in your school or workplace or that you’ll never be bullied or loathed or put-down ever again. I can’t promise that your world will be any less overwhelming, any less dizzying, or any less difficult to live in than it is now. I can’t promise that you’ll become the next Nobel Prize winner, the next Pulitzer-winning author, the next Grammy-winning musical artist, the next Oscar-winning actor or actress, the next gold-medal Olympian, or what-have-you. I wish all of these things for you, of course, but I’m no psychic; I haven’t a clue what your future holds.

But having dealt with suicidal urges since the age of twelve, I do know this: staying alive is worth it.
Now, some of you may be thinking, “Yeah, well, staying alive may be worth it for you, but you don’t know me, and you don’t know the hell I live in.” And, indeed, I do not. I don’t know if you having a loving family or supportive friends; I don’t know if you have family or friends at all. I don’t know what it’s like to have your exact sensory issues, your exact deficits, your exact anxieties and fears, your exact tics and stims, your exact pain, your exact loneliness, or your exact regrets. I don’t know if you’ll ever graduate high school or college, and I don’t know if you’ll ever get a job (fun fact: I turn 20 years old in a month, I’m a straight-A student who supposedly has “decent social skills,” and I have never been employed a day in my life. It’s not just you, I promise). I know what it’s like to have my PDD-NOS, to have my weakness and inadequacies and painful memories and regrets, but I don’t know what it’s like to have yourstruggles, and I’m not going to pretend that I do.

 But I know what you do have: you have yourself, and that “you” deserves a chance—a chance to try, a chance to experience, and a chance to find beauty in this world. See, there’ll be moments that you’ll be glad that you stuck around to experience. I can’t promise that the moments will be particularly abundant, but I can promise you that they’re there. There’ll be a song that you never heard before that sends chills from the tip of your head to the core of your being. There’ll be a time when you help a stranger, perhaps even an act so small, so inconsequential to you that you have no idea it was an act of kindness at all, and that stranger will tell you that you made their day, and your heart will beat a little lighter for a little while. There’ll be that hobby that you get into, a hobby that you may or may not ever be “good” at, that will fill you with awe and, well, fun! There’ll be a way that the sunset scatters across the clouds, a way that the leaves tumble from the trees or that the wind sweeps across a field of tall grass, a way that the rain will dance along the rooftops, that will take your breath away, even if for only a second. There’ll be a contest that you enter that you swear that there’s no way you will win or place in…but you do, because you’re more incredible than the self-loathing thoughts in your head will ever let you believe. There’ll be battles that you win, discoveries that you make, and joys that you have that bring you happiness just when you thought that happiness could no longer exist.

And maybe it’s presumptuous of me to assume that the little moments of happiness are worth dealing with whatever pain you are dealing with. But consider this: maybe you’re somebody else’s small miracle, somebody else’s stranger, smile, random occurrence that makes their day or even their life, and maybe your dark thoughts are being conniving little jerks that aren’t letting you see this.

Sometimes, you mean a lot more to a person than you’ll ever be able to believe.

Throughout most of my adolescence, I swore that my father merely tolerated me because he had to and that his life would be indefinitely better without me in it. It wasn’t his choice for his wife to give birth to his child when he was 48 years old, when his other children were already grown up and getting on with their own lives and when retirement was just over the horizon. It wasn’t his choice for that child to be “developmentally delayed” and for that child to need speech therapy and special education. It wasn’t his choice for my mother, through no fault of her own, to be forcefully removed from our family picture when I was six. It wasn’t his choice to have a daughter who threw deafening tantrums in the middle of crowded supermarkets and for strangers to judge his parenting skills. It wasn’t his choice to have a teenager that bit and scratched herself, that would almost get them both killed with her inability to distinguish “No!” from “Go!” from the driver’s seat of her small car,  that made him stay up late at night sobbing with worry. It wasn’t his choice to have a kid like me.  I thought that there was no possible way that he could have trulyloved me—all I ever seemed to do was drain and irritate him, and he didn’t deserve the trouble I put him through.

And I told him this in a therapy session one day; I told him how sorry I was for ruining his life and how I wish that I could be a better daughter, one that didn’t make things so worrysome for him. He was absolutely flabbergasted; he swore that I was the best thing that ever happened to him. Many days, I highly doubt that this is at all true, but the way his eyes almost glistened with tears (note: this is a man who passes large kidney stones and attends family members’ funerals without even hinting at a tear) that day tells me that I must mean something to the guy. He said that I keep him young, that his later years would have been so much less colorful without me in it. Now, I’m sure that I age him much more than I refresh him, but maybe the goofy poetry that I write inside of hand-made cards serves as a Fountain of Youth running behind those wrinkled eyes. Also, I’m his personal tech support; I’m the one that taught him how to use an iPhone and how to set up a Facebook account. That has to count for something, right?

See, we humans aren’t too good at telling our fellow humans how much they mean to us. It may well be that where you look in the mirror and see a burden, an aggravation, a chronic screw-up, others see a joy, a blessing, a person worth having around and a person that makes their lives better simply by you being in it. When you see yourself as unlikable, you may wonder how anyone else could possibly like you, either—I,  personally, tend to expect that everyone sees me as bothersome or annoying and am often very taken aback when someone admits any sort of fondness towards me. But you are likeable, and chances are that there’s at least somebody out there who has a fondness towards you and who would be sad if they could no longer experience your presence. 

And I know that you can know and believe all of this and that it still won’t take the thoughts and feelings away. I still feel absolutely worthless and useless many days, and I still don’t particularly like myself as a person sometimes.  Knowing all of this about the beauty of living and about how loved I really am doesn’t do much to keep the images of a knife cutting through my throat or my body dangling from a tree by a rope from popping up from time to time. It’s an on-going battle, one that you may have to fight every single day or even every single hours. It’s not at all a fair battle, it’s not at all an easy battle, and it surely isn’t a fun battle, but it’s a battle worth fighting, and it’s a battle that you’re more equipped to fight that you may ever feel that you are. And the good news is that there are so many people fighting this battle alongside you and that would be more than happy to help you recharge your ammo. There’s the National and Regional suicidal hotlines for your area (United States: 1-800-784-2433 ; U.K: 08457 90 90 90 ; here’s a pretty comprehensive list: http://www.reddit.com/r/SuicideWatch/wiki/hotlines), as well as several online chatrooms, such as https://www.imalive.org/. There’s the members of this Aspie Life group. There’s me, if that’s anything. There are so many people who want you to win this battle, who want you to live, who want you to experience happiness and success and all that life has to offer. There are reasons to keep fighting. I promise. 
Because I know that I can’t promise that you’ll ever win a Nobel, a Pulitzer, a Grammy, an Oscar, or an Olympic gold medal, that you’ll ever have an abundance of friends or your dream career or a lover or even a degree, but, you know, you just might, and the only way to find out is to stick around and see. 


Submitted January 4th, 2015 
Author: Paula Gomez
Click blue link for: Email Contact

Thursday, June 30, 2011

"Official Diagnosis" and older child on the spectrum???

Pookie "officially" received his diagnosis Wednesday, June 22nd at aprx. 2:15pm. Although the doctor felt he was close to being diagnosed as having Pervasive Developmental Disorder with SO..........she said that due to a few "oddball" characteristics, he was getting a diagnosis of High Functioning Autism instead. 

Am I surprised? No. Is it still a blow to me? Yes. 

I'm not really sure why this hit me hard at all. Since Pook was a year and a half old, I suspected that he would end up with a diagnosis on the Autism spectrum. Although I went back and forth with specialists along the way suggesting High Functioning Autism, PDD, or Asperger's, we all knew he was somewhere on the spectrum. I've pushed for him to get the early intervention he needed with therapies and geared them towards Autism as I found these therapies helped him reach his potential. High Functioning Autism isn't a new concept for me regarding Pookie. I've realized a diagnosis on the spectrum was coming for the last 3 1/2 years. Yet, after hearing the "official" diagnosis, it was as if something inside of me fell flat. 

I've discovered that throughout the  years, secretly inside, in a place hidden from even myself, I was hoping. I was hoping that maybe the problem was my parenting skills. Maybe, somehow, I'd gone wrong with the third child. Maybe it was because I had health issues that limited me the first years of his life and his "oddities" was  a direct result of this. I hoped that when others said, "He's just spoiled" or "You let him get away with to much"........part of me actually hoped this was true. If it was me, then that could be easily changed and dealt with. If I was responsible, then his future was simpler. 

It wasn't me though. I'm not saying my parenting is perfect or that I've "succeeded" as a parent. Merely that my son's wonderful oddities aren't "my fault". With that realization, the landscape of his, and my, future has changed. It's not a bad thing. Just different. 

As I spent the last week thinking about Pook's official diagnosis and exactly what that means for us, I was given another tentative diagnosis for my soon to be 14 year old son. I went into the appointment expecting to hear that my eldest was possibly ADD or maybe that he was OCD. Yet, when the counselor suggested Aspergers, everything in my world froze. My brain sputtered and gasped for understanding. HOW?? He's almost 14 years old........how could I not have noticed he was on the spectrum? How could I have spent the last 3 and a 1/2 years researching Autism spectrum disorders and not have noticed? How many times did I draw my husband over while researching and say, "He, doesn't this sound like Keeg?" How could I have not made the connection? 

ASPERGERS......with this suggested diagnosis, the landscape of the future didn't change. Instead, the future moved to a far distant planet I never considered before. This just doesn't fit. Keegan taught himself to read by age 2 and 1/2. While I was teaching him letters and sounds, he was already reading Dr. Suess books and just didn't reveal it to me. By the time he was in elementary school he was reading high school level books. He breezed through math and grasped science concepts beyond his years. He learned how to play chess after sitting through one single game and spent the rest of the night beating adults that had been playing for years. He started working in college textbooks just this past year, at the age of 13. How how how could this be? 

Yet, the more the counselor talked to me and explained characteristics and signs of Asperger's, the more ti all seemed to fit. The lack of concept of personal space and how more often then not you have to remind Keeg to "back up" when he's talking to you. How he never seems to notice that a conversation has, or should have, ended. How he misses social cues, facial expressions, and has never been embarrassed, even when it seemed he should have been. 

So, while scheduling Pook's evaluations for increased therapy services, I am now also scheduling evaluations for Keeg to determine if he, in fact, does have Aspergers. Even though I can see the signs, and see the possibility, I know that deep down inside, in a place hidden even to myself, I'll continue to hope that it's just me. That maybe I haven't parented correctly and the oddities that Keeg is exhibiting are in fact a symptom of my poor parenting.

Until the "official" diagnosis comes...............

In the meantime, I'm going to continue to read "Welcome to Holland" over and over again. Tonight, I printed it and am posting it above my computer desk. Yes, the landscape of the future has altered and changed for our sons........but it's a beautiful landscape nonetheless.